Wednesday, November 18, 2009

Jiggity Jig

Home again
Been home since Saturday.  Oh my dear god!
The ride home home after nearly 1 1/2 months in the hospital...hard to describe
The car wash was beautiful.  Beautiful.
The Mexican market was full.  Joyful
I just watched the low and high tide of cars in the Safeway parking lot while Carol shopped.
Happy people, sad people.  People.
Sitting on the couch watching my feet
Snoozing...catching up on lots of hospital nights with only 2 hours sleep.

I'm getting better.  And it'll take some time to get my strength back.
But truly...
each moment is new.
each moment is a joy.
no future
no past
now is damn beautiful
even with fat steroid filled feet...like little manatees.

Saturday, November 7, 2009

Back to the spa......

Well...I'm back in the hospital for a bit.  They're trying to get my GVHD (graft versus host disease) under control.  They know what to do, and it's pretty high tech.  They're using a photopheresis machine to take blood out of me, separate my cells, add a light sensitive drug, then put them under UV light, and put them back into me.  A little like dialysis.  They don't really know just how this works, but it does.  It kills a few cells, and calms down the rest.  On top of a pretty big rash, the new cells are hitting my liver and my GI tract.  And this machine works on it all.  Fingers crossed...but the docs are totally confident in this procedure.
I just want you to know wazzup.  At least I had nearly a week at home.  Keep loving each other.......
xoxoxoxoxoxo
Lee